Patient Advocacy Groups
6-month support programme that will include:
Understanding PAGs’ current skills, knowledge and capacity
Agreeing individual SMART goals and action plan
Targeted support including:
Planning for drug development and access
Generating and presenting evidence
Working with industry
1:1 coaching to provide practical advice and support for planning and implementation
We also offer bespoke packages for whatever stage you are at in the drug development journey.
If you are interested in accessing our support, please complete this short application (Word) form and return it to us:
Patient Advocacy: Additional Services
Additional 1:1 Sessions
'Deep Dive' workshops
1:1 sessions Action Planning
Facilitate Partnership Meetings
Identifying Clinicians and KOLs
Focus Groups Preparing Proposals for Funding
Additional support, projects and advice can be provided on request.
Click here to email us for more information, or use the link below to go to our contact page.
"Rare disease patient group involvement in drug development and HTA is essential but not all are able to engage effectively to aid decision making"
Additional Services for patient advocates:
We provide practical support to individual PAGs