Six case studies of Realise Advocacy support for patient advocacy groups in HTA:
Access and reimbursement: An introductory guide for patient groups, providing an overview of the key steps in health technology assessment, and suggestions of how PAGs can contribute at each stage. Includes a glossary of commonly used terms and links to other useful resources.
A report on Realise Advocacy's 2021 pilot project, providing tailored support to a group of six rare disease patient organisations. Including findings on PAGs priorities and needs, and key actions to ensure sustainable and equitable access to support.
Navigating Health Technology Assessments
Realise Advocacy at Findacure RareWebinar series, September 2021
Understanding Health Economics: Preparing Your Patient Group for HTA
Realise Advocacy at Findacure RareWebinar series, July 2021
Our 2023 report on the real cost of Patient Advocacy Group involvement in HTA, informed by a review of available literature and in-depth interviews with 6 rare disease PAGs: