Rare Disease Patient Advocacy Group: “It has been a great learning experience, especially from the point of view of listening to those who have been through the process or were even involved in it in a past life. Hearing from others taking part who have been through the process was also beneficial"
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Lindsay Birrell (nee Weaver)
Tel: +44 (0)7968 841 122
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Josie Godfrey
Tel: +44 (0)7960 522 104
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