Our reports, guides, webinars and training materials are designed to turn insight into practical support for advocacy, policy, access and research.
Research outputs and published work exploring how patient insight can inform policy, practice and future change.
The final RareCare reports will be published on 14 September, sharing findings from the NIHR funded evaluation of England’s Rare Diseases Action Plans
A Realise Advocacy report exploring the time, capacity and organisational impact of patient involvement in Health Technology Assessment, and the support patient organisations need to contribute effectively.
Supporting patients to maximise their impact in HTA
Research abstract presented at ECRD on practical support for patient groups engaging in HTA.
Practical guides and tools to support patient organisations, strengthen advocacy and improve engagement with access and decision-making processes.
Supporting Patients in Drug Development and HTA
Pilot report with practical recommendations to help rare disease patient groups prepare for drug development and HTA.
Access and Reimbursement: A Guide for Patient Groups
An interactive guide to help patient groups understand access and reimbursement pathways.
Patient Engagement in HTA
Guide on patient involvement in NICE HTA processes, featuring insights from Lindsay Birrell of Realise Advocacy.
Accessible learning and discussion to help organisations build knowledge and confidence across HTA, access and patient involvement.
Measuring What Matters: Patient Involvement in HTA
Webinar with Josie Godfrey and Lindsay Birrell exploring how patient involvement can strengthen Health Technology Assessment and help ensure evidence reflects what matters to patients and families
Navigating Health Technology Assessments
A practical webinar from Beacon and Realise Advocacy helping patient organisations understand HTA and how they can engage effectively with the process.
Access and Reimbursement Online Course
An online course developed with Beacon to help patient groups understand access and reimbursement processes and build confidence in engaging with decision makers.
