Insight, strategy and advocacy rooted in lived experience
Our Expertise
Rare Disease Patient Advocacy Group: “It's great that patients get a voice in the process, but the downside is that the overhead to provide that voice is substantial with no support.”
Services
Patient Advocacy: Core Topics
Selected Work
What We Do
Examples of work across rare disease policy, lived-experience-led research, patient organisation strategy and access.
Work With Us
We are interested in projects and partnerships that bring together lived experience, rare disease policy, research, evaluation, health inequalities, patient advocacy and strategy.
We can support one-off projects, longer-term partnerships and flexible consultancy or fractional roles.
Contact us
