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Patient Advocacy: Core Topics
Rare Disease Patient Advocacy Group: “It's great that patients get a voice in the process, but the downside is that the overhead to provide that voice is substantial with no support.”

Realise Advocacy is working to build equitable and sustainable support for rare disease PAGs' involvement in drug development and access

Realise Advocacy supports patient involvement in drug development and access through:

  • Providing practical support to individual rare disease PAGs involved in drug development and HTA
  • Working with partners to drive a sustainable and equitable approach to supporting all rare disease PAGs
  • Supporting companies to maximise the impact of their engagement with rare disease PAGs