Insight, strategy and advocacy rooted in lived experience
Realise Advocacy helps organisations understand communities, clarify priorities and turn evidence into practical action.
We support research, policy, strategy, engagement, campaigns and access work across rare disease and wider health policy
Realise Advocacy brings together complementary expertise in lived experience, community engagement, charity leadership, policy, access and system influence.
Realise Advocacy is working to build equitable and sustainable support for rare disease PAGs' involvement in drug development and access
Realise Advocacy supports patient involvement in drug development and access through:
- Providing practical support to individual rare disease PAGs involved in drug development and HTA
- Working with partners to drive a sustainable and equitable approach to supporting all rare disease PAGs
- Supporting companies to maximise the impact of their engagement with rare disease PAGs
Lived-experience-led research and evaluation
We design and support research that involves people with lived experience from the beginning, including PPIE strategy, peer researcher models, community insight, inclusive methods and accessible materials.
Policy, evidence and evaluation
We help turn complex evidence into clear findings, policy reports, recommendations, briefings and practical outputs that can support decision-making.
Patient organisation strategy and advocacy
We support patient organisations with strategy, campaigns, stakeholder engagement, community insight, board development and advocacy planning.
Patient advocacy in access and decision-making
We support meaningful patient involvement in drug development, HTA, access, service improvement and decision-making processes.
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Our Expertise
The Real Cost of Patient Involvement
Rare Disease Patient Advocacy Group: “It's great that patients get a voice in the process, but the downside is that the overhead to provide that voice is substantial with no support.”
Services
Patient Advocacy: Core Topics
Social Media
What we do
