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Patient Advocacy: Core Topics
Rare Disease Patient Advocacy Group: “Realise Advocacy took us through the process one stage at a time, and I can honestly say that without their support, we would not have been able to interact with the review as effectively as we did.”
Realise Advocacy is working to build equitable and sustainable support for rare disease PAGs' involvement in drug development and access
Realise Advocacy supports patient involvement in drug development and access through:
- Providing practical support to individual rare disease PAGs involved in drug development and HTA
- Working with partners to drive a sustainable and equitable approach to supporting all rare disease PAGs
- Supporting companies to maximise the impact of their engagement with rare disease PAGs
